Sarcoidosis

[livingwith]

I was diagnosed with Sarcoidosis about 11 yrs ago at the age of 28 (white female) I went through a gammot of symptoms over the course of about 5 mth until they finally discovered the problems that were occuring with my eyes went hand in hand with all of the other things I had been experiencing the 6 mths prior and told me it was Sarcoid.
It started with joint pain mostly in my ankles to the point I could hardly do stairs, what they thought were mumps, bells polsy, fatigue, weight loss, night s...Read the full article

[sooziemq]

Yes I have. I was diagnosed with sarcoidosis in lungs in 1994. I am now 38. I was put on strong doses of predisone. My disease was pretty far advanced. I had so many kidney stones passed I lost count and I also had 4 lithotrypsys (surgery for stone removal) because the stones would grow to fast for them to be passed. It took about 2 years of being on prednisone to have no signs of the disease. Lately I havent been feeling good. Many different little things are hapening each week. I have been experiencing trouble swallowing like there is a lump or blockage in my throat. I am exhausted at times. And at times I feel like I have to take a deep breath like I am try to catch my breath if that makes sense. I broke out with a burning rash on my thighs yesterday. My legs felt like they were on fire inside but the rash didn't itch it just hurt. My vision has been getting bad. Blurry vision a lot. I have tested positive for hyperthyroidism 1 1/2 years ago and when I went to take the xray test I was negative. I still have ongoing symptoms like hyperthyroidism but not all the time. I am soooo frustrated. I feel like the doctors think I am a hyprchondriac so I haven't gone to the doctor for months. I feel like nobody will listen to me. I mean a person knows when something is wrong with their body but no 1 will help me. I don't know where to go. They keep saying your chest xray is fine. I need help anybody?