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hemoptysis (every day)

Post a new topicby Larrissa on Fri Aug 15, 2008 7:45 am

My name is Larrissa and I am a 28 yr old woman in Australia. I was diagnosed in January 2008 with Anti phosophilipid Syndrome and Chronic Thrombo Embolic Pulmonary Hypertension They have given me 2 years to live and well its been 8 months since then and in June I ended up in hospital getting blood transfusions from coughing up blood. It eventually stopped after 4 days of being taken off my warfarin (which is scary mind you with all the clots i have). Since june i have coughed up twice and in the last week i have coughed up every day for the last 6 days. I am worried and the doctors will do nothing as i am unable to have any sort of surgery because in addition to my other problems i have heart conditions as well. I am getting married in october and would like to make it to my wedding. Has anyone found some way of relieving the hemoptysis or even getting rid of it for a short period of time. It makes me sick every time and i am getting really scared. Any answer would be appreciated!! :)

Thank you in advance Larrissa
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Larrissa
 
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