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questions about CF

Post a new topicby son age 7 on Fri Dec 12, 2008 12:47 pm

My son is age 7 and routinely coughs with chronic sinusitis since age 3. The cough is only seasonal; from Sept -April. He had large bowl movments at age 3 but the size has diminished with time. He had a negative sweat test (11) at age 4 (at John's Hopkins a credited center) and a negative genetic test (32 mutations checked) at age 6. Can my son still have CF? Is an Ambrey test needed with a negative sweat test? Any other ideas?

Thanks
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Re: questions about CF

Post a new topicby Davy9 on Fri Dec 12, 2008 7:36 pm

I might suggest that you have him tested for allergies. Have you done any RAST testing?
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Respiratory Care Practitioner (Retired)Davy9
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Re: questions about CF

Post a new topicby son age 7 on Mon Dec 15, 2008 4:28 pm

Thanks I will ask the Doc

I think I underplayed my son's cough. It is quite several with routine gagging and vomitting at night.
The cough reduces while sleeping but again bad upon waking as the mucous drains down the back of his troat.
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Re: questions about CF

Post a new topicby Davy9 on Mon Dec 15, 2008 8:30 pm

Get that sinusitis properly treated too. It can really wreak havoc on the lungs too. They may need to open them up for better drainage (surgery). They can image those sinuses and they can also culture what's infecting them. If Johns Hopkins says it is not CF then it is likely allergies or that sinus problem.
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